Empowering Partnerships Project Toolkit Resources
This toolkit offers information and resources from all phases of our project to guide future replication efforts, so that you too can inspire people living with dementia (PLWD), care partners (CP), and researchers to look at research through a more inclusive lens, offering PLWD and their CP more robust roles in all stages of research. Feel free to contact us if there is something else from our project you would like to access.
Toolkit Guide
This toolkit contains a narrative guide, a podcast, two deep dive videos, and short video from our two day training workshop to give you an in-depth understanding of our project activities and insights. To get started, click on the image to open the narrative guide to learn more about the Empowering Partnerships project and all the resources contained in this toolkit! Then check out the podcast, videos below, and all the following linked resources.
Project Overview Media
Project Introduction
- Why is the Empowering Partnerships Project important? A Video with Bob Savage – A Person Living Well with Dementia
- PCORI Engagement Rubric for Applicants
- Advisory Council Memorandum of Understanding
- Project Team Bio-sketches
- HHS Summit Final Report
- Final Recommendations from Persons with Dementia Stakeholder Workgroup
- Teresa Webb video on HHS Experience
Coalescing Stakeholders and Learning from Others’ Experiences
- Video 1: Building a Partnership Network
- Literature Review (12/31/2018)
- EP Interview Questions
- Researchers Interviews on Training
- PLWD and CP Interview Themes
- Marketing & Outreach Plan
- Satellite/Advocate Opt-In checklist
- DPC Advocate Pledge
- Video: Why Join the DPC?
- Getting Connected: An Introduction to the Dementia Peer Coalition Slidedeck
- Empowering Partnerships Introductory Kickoff Session Slidedeck
- Values Activity Worksheet from Kick off session
- Research Design slide Bureau of Sages
- Invitation to Training & Next Steps flyer
Developing and Guiding the 2-Day Workshop Experience
- Video 2: LiveWell’s Empowering Partnerships Training Experience
- Experiences, Strengths, and Preferences Inventory
- ESP Inventory Interview
- Empowering Partnerships Bio-sketch Examples
- “Learning to Partner with People Living with Dementia – A Primer” Webinar
- Words Matter
- “Supporting and Accommodating People with Dementia at Professional Conferences and Other Events”, Dementia Alliance International
- Empowering Partnerships Workshop Slidedecks
- Appreciative Inquiry Slide
- Opening thoughts from Geri and Jim Taylor
- Bob Savage thoughts on Resilience
- Empowering Partnerships Activities Binder
- Empowering Partnerships Workshop Slidedeck
- Empowering Partnerships Action Plan
- Evaluating Dementia Services and Supports: Instrument Resource List
- Outcomes of the James Lind Alliance Dementia Priority Setting Alliance
- Grantee-Implemented Evidence-Based and Evidence-Informed Dementia Interventions
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Post-Workshop Results & Co-Research Reflections
- Summary of Empowering Partnerships Priorities
- Research Project Summaries
- Pre/Post Training Workshop Survey
- Dementia Attitudes Scale
- Empowering Partners Workshop Evaluation
- Empowering Partnerships Workshop Video: What one word would describe your experience?
Project Replication and Assistance
The LiveWell Institute provides support to persons with living with dementia, carepartners, and researchers to collaborate in any or all stages of research, from initial study design through data collection and analysis to final dissemination. Through the LiveWell Institute’s Empowered Partnerships program, communities are supported in navigating all stages of co-research.
If you have questions or would like more information on the Empowering Partnerships Project or the LiveWell Institute, please contact us:
Heidi Gil, Project Lead, hgil@livewell.org